Sunday, 30 August 2020

Hearing the hidden voices and speaking truth to power

 

It would have been almost impossible to miss the various stories about voices last week. There were many. However, the one that stuck in my mind in particular was the enormous efforts Amazon have gone to ‘educate’ Alexa over the various dialects and terms used in different parts of the UK. If you did miss it, you can read about Susie Dent, lexicographer, and her work with Alexa here. It’s clear that as technology advances, the everyday world as seen and experienced by others, becomes easier to understand – more of which later.

Now, if truth be told, I have been known to raise my voice slightly at Alexa. On rare occasions I have even used the odd word I wouldn’t want my mother to overhear. Why? From sheer frustration when for whatever reason Alexa doesn’t understand me. Conversely, Alexa is sometimes treated like a member of the family, and she gets thanked (for example, telling me my 20-minute timer is up). Billy the parrot is fascinated with her. He has something to say about most things, but thankfully he has only learnt to say Alex. The ‘a’ is missing otherwise I have no doubt Alexa would be switched on and off all day long. As it is, he speaks with the Radio 2 presenters, and often I will come in and he’s chatting away to the radio – but with the exception of the odd recognisable word, most of the time none of these conversations make much sense.

However, these are voices that are heard. Last week I took part in a very challenging webinar, organised by the Primary Care Journal and Public Policy Projects. The focus was on ‘hard to reach’ groups, using the provision of dental care for homeless people as a means of getting into the issues. Hearing about the innovative ways people have found to provide oral health care was fascinating. I hadn’t appreciated dentists often categorise folk into three different groups: those in pain; those who have regular six monthly check-ups; and those who want a smile. The last group are also not who you might think they may be.


During the webinar several case studies were presented of people whose lives had been impacted by the use of drugs, alcohol, homelessness or poverty. Often for these people, buying a toothbrush and toothpaste wasn’t high up on their list of priorities. Many had experienced enormous difficulties in gaining access to any primary or community health care. I did smile at hearing one of the participants, a dentist, describing how he had to take off his white coat to become a person before he could reach out to these groups of people. But they were doing great work, and helping people regain their smile, which in turn boosted self-confidence, leading to many folk being able to turn their lives around for the better.

What was also clear, however, was that for every individual helped in this way, there are plenty more people out there with similar problems. Last year there were over 14.3 million people in the UK living in poverty and a further 320,000 people who were homeless. The Covid-19 pandemic is inevitably going to exacerbate this situation. As one participant in the webinar noted, these aren’t so much ‘hard to reach groups’ as the groups we often choose to ignore. Their voice is hidden and as such not heard.

Additionally, there is another group whose voice is sometimes ignored. These are the people who don’t own a smartphone, or have access to a computer. Whilst latest estimates note that 95% of the UK population own a smartphone, that missing 5% represents over 3,400,00 people. Increasingly we see the use of such digital technology becoming commonplace in our everyday lives. And whilst I might sometimes get frustrated with Alexa, it’s nothing compared to my frustration when trying to resolve an issue or a problem and not being able to find a phone number to actually speak with someone. Going on-line and using chat boxes, FAQ and so on, or waiting for email replies that never come increases my frustration. Even if there is a phone number, the pandemic has meant there are fewer ‘phone associates’ to handle the calls, so waiting times become almost unbearably long.

But that is nothing like the issues faced by those who don’t have access to new technology. Indeed, they may not even know what it is that they don’t know. They are not alone. Last week GP Helen Salisbury writing in the BMA, noted a problem with remote consultations being the ‘unknown unknowns’. You don’t always know what you are not seeing. Secretary of State for Health and Social Care, Matt Hancock, has said that in the future, all GP consultations should be done remotely by phone or video unless there are compelling clinical reasons not to do so. Although Helen describes doing her best for patients during the pandemic using digital communications, she notes that where there have been successes, it has been a result of the knowledge she has gained of her patients over many years.

She makes a compelling case for a more balanced and nuanced approach to be taken with patient consultations as the pandemic lockdown measures ease. You can read it here. To me she is a good example of someone speaking truth to power. Helen might even consider making an application for the role of Chief Executive of the newly created National Institute for Health Protection. In the ‘Position Specification’ (note it’s position not person) the successful candidate’s profile needs to ‘demonstrate credibility and confidence to speak truth to power; they will have the stature and interpersonal skills to advise all levels of national, regional and local government with an objective and independent mindset’.

I think Matt is possibly in dire need of someone like Helen to help him understand he actually doesn’t need to change the law, so that nurses can give flu vaccinations this Winter. They have been doing so, and very successfully, for many years. But perhaps like others, their voice is hidden and not heard too.

 

Please note: the Alessandro Bianchi/Reuters mask pictured above is not suitable for Covid-19 use.

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